Obe Wan's Doctors Appointment

We went to Kosair Children's Hospital Thursday--six weeks after our initial visit to the Nephrologist. (This is a Kidney doctor.) We were told to change our diet to a no/low sodium diet, complete a 24 hour urine analysis, have some ultrasounds, some X-rays and blah, blah, blah. I had taken both
boys out of school for the day as my Dad and StepMom were coming into town and we were going to spend the day with them after our doctors/hospital visit. Easy as pie. I had simple plans. They were going to go on the Louisville portion of the Bourbon tour and we would go to the doctor/hospital. We would meet up later at Churchill Downs for some horse racing. I called the nurse on Tuesday to double check the times of all the appointments and get the address for the hospital. She told me she was glad I called because the doctor wanted to leave town for Memorial Day weekend and asked if I could move my appointment up an hour. We were the only appointment he had after lunch and if we could come as soon as our "stuff" at Kosair was done it would really help the doctor! SUPER. We could enjoy the family that was in town AND the boys were already out of school for the day. A-W-E-S-O-M-E!

If only it were that easy. It started out swell. We got to Kosair--a really cool children's hospital with interactive Kid stuff!

 The boys had with the mirrors! It was amusing to watch them.

We get to do a sonogram. I asked Obe Wan if he was having a boy or girl. He did not think I was funny. At the same time Aunt Ree texts me asking the exact same question. I read Obe Wan the text message. He starts crying. He does not think this is funny. I apologize as I don't want him upset as we still have several more tests to run and we haven't even seen the doctor yet.

We get everything done the doctor asked me to do. We go to the doctor's office. Mind you these places are two blocks away. We parked where I thought we would end up. He makes us wait--for ONE HOUR AND 36 MINUTES. After an hour I walked back out and reminded the nurse we were in the room. Man, was I hot to trot. I had rushed the boys through a snack because we didn't have time for lunch. I wanted to help the doctor get out of town and help us get on with our day. WHY, oh why, was he making us wait? I would have stuck to our original 2 o'clock appointment instead of arriving at his office at 12:50. I will have to say the boys were super. At one time they asked me to read the books in the office. I read all three--even the princess one. LOL!!!

So, he finally comes into the room. The first thing the doctor asks me is where are the test results for the blood work? What?!? I pull out ALL my paperwork and show him this is what I gave Kosair. Sure enough. There was the script for blood work. Well, darn it! He spends less than five minutes with us. He presses on Obe Wan's belly and back to have him tell him, Yes, In FACT it does hurt. The doctor tells me there is no calcium and no protein. Kidneys are working fine. You need to see a urologist as there is still a significant amount of blood in his urine. He tells me we need to go back over to Kosair and have the blood work done and another urine sample. (He had us give one at 12:50 when we arrived as well....) And you need to come back in 8 weeks. WHAT?!? Why the heck am I coming back to you--Mr. let us sit and wait for-e-ver. If my kiddo's kidneys are working fine, than no, we will not be back. Thanks, but no thanks. 

We went back to Kosair to have Obe Wan give another urine sample. (His 6th one since December.) He also had the blood work done. This will be put in the system so the Urologist will know the results. I have yet to hear from the Urologist (it is Monday, appointment was Thursday) and it is up to them to refer me on. 

Sigh. 

1. We will go see a Urology soon. (This Mama bear will be calling and reminding them to refer us on....)

2. We still don't have definitive answers.

3. Obe Wan was very upset as he doesn't know why it hurts to potty and he is ready to eat sodium!

4. I'm glad there is nothing seriously wrong with Obe Wan's kidneys.

5. We still made it to the race track.